Eurordis - Rare Diseases Europe

Where the EU money came from

Funding by EU programme. Amounts are Eurordis - Rare Diseases Europe's own share of each project, not the project's full budget.

Projects

42 EU-funded projects, newest first. Eurordis - Rare Diseases Europe led 14 of them as coordinator. Each links to the official record.

• RAMP-UPAssociated partner

  Regenerative Medicine and Advanced Medicinal Therapeutic Products United for PhD excellence

  Horizon Europe · 2026–2031 · Project on CORDIS ↗
• CAPRICORDAssociated partner

  Competent Authorities for Pricing and Reimbursement to coordinate Involvement of clinical experts and patients, to manage uncertainty and the challenges associated to ORphan medicinal proDducts

  EU4Health Programme (EU4H) · 2025–2028 · Project on the EU portal ↗
• PERIFORMANCEPartner

  PUBLIC ENGAGEMENT IN RESEARCH INFRASTRUCTURES FOR MISSION CANCER: MANAGING COMPLEXITY OF EMERGING TECHNOLOGIES

  Horizon Europe · 2025–2028 · Project on CORDIS ↗

  €20ktheir share
• RealiseDPartner

  Comprehensive methodological and operational approach to clinical trials in rare and ultra-rare diseases

  Horizon Europe · 2025–2029 · Project on CORDIS ↗

  €505ktheir share
• ERDERAPartner

  EUROPEAN RARE DISEASES RESEARCH ALLIANCE

  Horizon Europe · 2024–2031 · Project on CORDIS ↗

  €811ktheir share
• JOIN4ATMPPartner

  MAP, JOIN AND DRIVE EUROPEAN ACTIVITIES FOR ADVANCED THERAPY MEDICINAL PRODUCT DEVELOPMENT AND IMPLEMENTATION FOR PATIENT AND SOCIETY BENEFIT

  Horizon Europe · 2024–2026 · Project on CORDIS ↗

  €102ktheir share
• EURORDIS OG2024Coordinator

  EURORDIS-Rare Diseases Europe Operating Grant 2024

  EU4Health Programme (EU4H) · 2024–2024 · Project on the EU portal ↗

  €1.4Mtheir share
• MMMAssociated partner

  Medicine Made to Measure.

  Horizon Europe · 2023–2027 · Project on CORDIS ↗
• EUCAPACoordinator

  EUCAPA: European Capacity Building for Patients

  EU4Health Programme (EU4H) · 2023–2025 · Project on the EU portal ↗

  €75ktheir share
• More-EUROPAPartner

  More Effectively Using Registries to suppOrt PAtient-centered Regulatory and HTA decision-making

  Horizon Europe · 2023–2027 · Project on CORDIS ↗

  €64ktheir share
• EURORDIS OG2023Coordinator

  EURORDIS Operating Grant 2023

  EU4Health Programme (EU4H) · 2023–2023 · Project on the EU portal ↗

  €1.3Mtheir share
• REMEDi4ALLPartner

  BUILDING A SUSTAINABLE EUROPEAN INNOVATION PLATFORM TO ENHANCE THE REPURPOSING OF MEDICINES FOR ALL

  Horizon Europe · 2022–2027 · Project on CORDIS ↗

  €1.4Mtheir share
• EURORDIS SGA2022Coordinator

  EURORDIS Specific Grant Agreement for 2022

  EU4Health Programme (EU4H) · 2022–2022 · Project on the EU portal ↗

  €994ktheir share
• EURORDIS FPA2022Coordinator

  EURORDIS Operating Framework Partnership Agreement for 2022

  EU4Health Programme (EU4H) · 2022–2023 · Project on the EU portal ↗
• FACILITATEPartner

  FrAmework for ClInicaL trIal participants daTA reutilization for a fully Transparent and Ethical ecosystem

  Horizon 2020 · 2022–2026 · Project on CORDIS ↗

  €160ktheir share
• SCREEN4CAREPartner

  Shortening the path to rare disease diagnosis by using newborn genetic screening and digital technologies

  Horizon 2020 · 2021–2026 · Project on CORDIS ↗

  €737ktheir share
• ERICAPartner

  European Rare dIsease research Coordination and support Action

  Horizon 2020 · 2021–2025 · Project on CORDIS ↗

  €144ktheir share
• SGA 2021Coordinator

  EURORDIS SGA2021

  3rd Health Programme · 2021–2021 · Project on the EU portal ↗

  €1.1Mtheir share
• EURORDIS SGA 2020Coordinator

  EURORDIS RARE DISEASES EUROPE SGA 2020

  3rd Health Programme · 2020–2020 · Project on the EU portal ↗

  €1.1Mtheir share
• RDCODEPartner

  Codification for Rare Diseases

  3rd Health Programme · 2019–2021 · Project on the EU portal ↗

  €30ktheir share
• EURORDIS SGA FY2019Coordinator

  EURORDIS RARE DISEASES EUROPE SGA 2019

  3rd Health Programme · 2019–2019 · Project on the EU portal ↗

  €1.0Mtheir share
• HTxPartner

  Next Generation Health Technology Assessment to support patient-centred, societally oriented, real-time decision-making on access and reimbursement for health technologies throughout Europe

  Horizon 2020 · 2019–2024 · Project on CORDIS ↗

  €626ktheir share
• EJP RDPartner

  European Joint Programme on Rare Diseases

  Horizon 2020 · 2019–2024 · Project on CORDIS ↗

  €942ktheir share
• c4cPartner

  conect4children (COllaborative Network for European Clinical Trials For Children)

  Horizon 2020 · 2018–2025 · Project on CORDIS ↗

  €654ktheir share
• PARADIGMPartner

  Patients Active in Research and Dialogues for an Improved Generation of Medicines: Advancing meaningful patient engagement in the life cycle of medicines for better health outcomes.

  Horizon 2020 · 2018–2020 · Project on CORDIS ↗

  €464ktheir share
• EURORDIS SGA FY2018Coordinator

  EURORDIS RARE DISEASES EUROPE SGA 2018

  3rd Health Programme · 2018–2018 · Project on the EU portal ↗

  €1.0Mtheir share
• Solve-RDPartner

  Solving the unsolved Rare Diseases

  Horizon 2020 · 2018–2024 · Project on CORDIS ↗

  €375ktheir share
• FPA 2018-2021Coordinator

  Framework Partnership Agreement 2018-2021

  3rd Health Programme · 2017–2021 · Project on the EU portal ↗
• EURORDIS SGA 2017Coordinator

  EURORDIS RARE DISEASES EUROPE SGA 2017

  3rd Health Programme · 2017–2017 · Project on the EU portal ↗

  €792ktheir share
• JARCPartner

  Joint Action on Rare Cancers

  3rd Health Programme · 2016–2019 · Project on the EU portal ↗

  €60ktheir share
• EURORDIS SGA 2016Coordinator

  EURORDIS SGA 2016

  3rd Health Programme · 2016–2016 · Project on the EU portal ↗

  €792ktheir share
• AEGISPartner

  Accelerated Early staGe drug diScovery

  Horizon 2020 · 2016–2019 · Project on CORDIS ↗
• ADAPT-SMARTPartner

  Accelerated Development of Appropriate Patient Therapies: a Sustainable, Multi-stakeholder Approach from Research to Treatment-outcomes - Sofia ref.: 115890

  Horizon 2020 · 2015–2018 · Project on CORDIS ↗

  €78ktheir share
• RD-ACTIONPartner

  Promoting Implementation of Recommendations on Policy, Information and Data for Rare Diseases

  3rd Health Programme · 2015–2018 · Project on the EU portal ↗

  €378ktheir share
• EURORDIS FY2015-2017Coordinator

  Proposal for Operating Grant Framework Partnership Agreement 2015-2017 for the European Organisation for Rare Diseases (EURORDIS)

  3rd Health Programme · 2015–2015 · Project on the EU portal ↗

  €770ktheir share
• GCOFPartner

  A stepping stone approach towards the Genetics Clinic of the Future

  Horizon 2020 · 2015–2017 · Project on CORDIS ↗

  €73ktheir share
• EURORDIS FY2015-2017Coordinator

  Proposal for Operating Grant Framework Partnership Agreement 2015-2017 for the European Organisation for Rare Diseases (EURORDIS)

  3rd Health Programme · 2014–2017 · Project on the EU portal ↗

  €770ktheir share
• WEB-RADRPartner

  Recognising Adverse Drug Reactions

  FP7 (2007 to 2013) · 2014–2017 · Project on CORDIS ↗

  €80ktheir share
• RARE-BESTPRACTICESPartner

  Platform for sharing best practices for management of rare diseases

  FP7 (2007 to 2013) · 2013–2016 · Project on CORDIS ↗

  €168ktheir share
• RD-CONNECTPartner

  RD-CONNECT: An integrated platform connecting registries, biobanks and clinical bioinformatics for rare disease research

  FP7 (2007 to 2013) · 2012–2018 · Project on CORDIS ↗

  €513ktheir share

Works most with

Organisations that shared the most EU projects with this one. A good starting list for consortium partners.

• Institut National de la Sante et de la Recherche MedicaleFrance · 11 shared projects
• Uppsala UniversitetSweden · 8 shared projects
• Assistance Publique Hopitaux de ParisFrance · 8 shared projects
• F. Hoffmann-La Roche AGSwitzerland · 8 shared projects
• Novartis Pharma AGSwitzerland · 8 shared projects
• Ucb BiopharmaBelgium · 8 shared projects
• University of Newcastle Upon TyneUnited Kingdom · 7 shared projects
• Stichting Radboud Universitair Medisch CentrumNetherlands · 7 shared projects
• Academisch Ziekenhuis GroningenNetherlands · 7 shared projects
• Astrazeneca ABSweden · 7 shared projects
• Sanofi-Aventis Recherche & DeveloppementFrance · 7 shared projects
• Karolinska InstitutetSweden · 6 shared projects
• Charite - Universitaetsmedizin BerlinGermany · 6 shared projects
• Academisch Ziekenhuis LeidenNetherlands · 6 shared projects
• Universitatsklinikum HeidelbergGermany · 6 shared projects
• Istituto Superiore di SanitaItaly · 6 shared projects

Fields it works in

Research fields recorded on its Horizon projects.

• adverse drug reactions
• artificial intelligence
• biochemistry
• business models
• civil society organisations
• data processing
• data protection
• data science
• drug discovery
• ebola
• ecosystems
• employment
• genomes
• health care services